A l’occasion du #LongCovidAwarenessDay #LongCovidAwareness
voir aussi sur BS :
https://bsky.app/profile/apresj20.bsky.social/post/3lkec76izmc2q
#ApresJ20 - Association Covid Long France (@apresj20.bsky.social)
Mots-clés de visibilité du Covid long pour ce mois de mars 2025, avec des cartes postales écrites par des malades, des vidéos de vulgarisation, etc. :
https://bsky.app/hashtag/LongCovidAwarenessDay
et
https://bsky.app/hashtag/LongCovidAwareness
9/97
In Feb 2020, I went to New York for work. A month later, I could barely walk to the store across the street. Brain fog got progressively worse. It took me almost a year to start being able to walk minimally again and for the fog to clear. I still remember the day I woke up with mental clarity for the first time in 10 months. 3 years to fully walk long distances again with a rehab program.
It's #LongCovidAwarenessDay. I'm mostly functional now. A lot of people aren't. All the local long COVID specialist programs have had their funding dried up. I'm one of the lucky ones who got help, and got better enough to kinda sorta keep going.
What happens to the people who get long COVID now?
(This is a thread now.
)
As far as I know, I've only had COVID once. It was a "mild" case. It didn't feel any worse than a cold and a bit of a sore throat for me. And even though I was fully vaccinated, took Paxlovid right away, and rested very very hard for three months (going to bed whenever I felt even the slightest bit tired), I still ended up with long COVID. I was strong and healthy before. I trained five days a week at the gym and yoga studio and hiked on weekends.
I'm scared shitless about getting COVID again. I'm one of the very few people I know who still masks regularly. #LongCovidAwarenessDay #LongCovid #Covid #MaskUp
I was an athlete for years. I did fitness competitions, trail running, mountain running, obstacle course races, interprovincial bicycling, hiking, and martial arts. I was a professional dancer, an aerialist, a model, and a LARPer. These days, I spend the vast majority of my time sitting down. I go to the gym a couple of times a week and try to go for walks every day, but if I exert too much or think too hard for too long, I'm exhausted.
This is not the normal feeling of being tired after a grueling workout. It's not a mind over matter thing. It's the kind of fatigue you feel when you're sick or dealing with a nasty injury. #LongCovidAwarenessDay #LongCovid #PostExertionalMalaise #ChronicIllness
@broadwaybabyto You shared, “First things first, you can wear a mask.” #longcovidawarenessday, #LongCovid.
It’s International Long Covid Awareness Day, and my latest article looks at the reasons why people believe they don’t know anyone with Long Covid.
We desperately need increased visibility into this debilitating chronic illness so that we can raise awareness and fund treatments, mitigations and cures.
Anyone can get Long Covid. It’s not limited to ‘only the vulnerable’ or those who had a severe initial infection.
This disease does not discriminate. Even people with asymptomatic initial infections have found themselves disabled by Long Covid.
It’s time we start processing the trauma of the pandemic and stop living in denial.
We are in the middle of a mass disabling event, and the longer it takes us to admit that, the more people will be harmed.
Let’s spread the word that the only way to avoid Long Covid is to avoid getting Covid in the first place.
Wear a mask. Stay home when sick. Clean and ventilate the air.
When we all agree to care about the air we share, we can begin to bring about real change.
https://www.disabledginger.com/p/i-dont-know-anyone-with-long-covid
Because of long COVID, my dad will never walk on the beach again. He can no longer play accordion or guitar because of long COVID.
Because of long COVID, I am no longer a martial artist, dancer, distance runner, or athlete. I no longer feel energetic. I no longer have proper restful sleep. I have aged rapidly. #LongCovidAwarenessDay #LongCovid #ChronicIllness
"Live blog: International demonstrations ignite for Long COVID Awareness Day"
"Demonstrations for International Long COVID Awareness Day have sparked around the globe. Whether raising awareness about the disease in public or from their homes, people with Long COVID and their allies have raised their voices to demand recognition, research, treatments, support, and prevention of COVID-19 …"
More quotes:
"Check out other organizations that fight for Long COVID day in and day out including:
Black Long COVID Experience, COVID-19 Longhaulers Advocacy Project, Long COVID Families and Patient-led Research Collaborative, among others!
Share information, check out these groups, donate today!
Long COVID research care and treatments matter for everyone."
3/3
#MEAction has been fighting to protect the Long COVID Advisory Committee at HHS, which was recently dismantled.
In this video, five patient-advocates read an open letter to Health and Human Services Secretary Robert F. Kennedy Jr.
https://www.youtube.com/watch?v=hQn3kqyAT6w
2/3
From #MEAction:
Long COVID Awareness Day
March 15
https://www.meaction.net/2025/03/14/long-covid-awareness-day/
"Today is Long COVID Awareness day, and we want to lift up the importance of Long COVID advocacy. We ask you to share this video created by #MEAction volunteers today."
Link to video in next post
1/3
I'm pretty into this framing of "new information about silent health damage from every covid infection", even though it is not new or very silent. I hope it helps some covid deniers rejoin the evidence-based world. Nice one, Quirks and Quarks.
Huge shout out to Bob McDonald for asking David Putrino all the good naive questions about covid on mainstream public radio. Starts at 19:30 or scroll down to that section.
https://www.cbc.ca/radio/quirks/mar-15-the-silent-long-term-effects-of-covid-and-more-1.7483146
Five years into the COVID-19 pandemic, this global public health crisis isn’t winding down, and more people are developing Long COVID each year.
This week for #LongCovidAwarenessDay, we’ve compiled a fact sheet of up-to-date statistics & citations on Long COVID.
Data is one of the most useful tools to strengthen understanding of #LongCovid: https://patientresearchcovid19.com/2025-long-covid-fact-sheet/
For all slides, visit our Instagram:
https://www.instagram.com/patientled/
It's #longCovidAwarenessDay and this toot from a year ago is just as accurate now, sadly.
I have adapted to working around it, but covid left a permanent Injury to my brain. I experience the world and communicate differently now. Everything is harder.
745 days since I got Covid. Omikron was supposed to be 'mild'. After a period of therapies and trying to work, I had to acknowledge I deteriorated.
Now 95% housebound. No more museum, concerts, hiking, gamenights, cooking or DIY. Trying meds as I am 1 of chosen for LC clinic for symptomrelief.
No cure though. I'm 1 of millions worldwide; with new patients finding out the joined this hidden club every day.
That's why it's necessary to invest in research.
On this #LongCovidAwarenessDay, I stand in solidarity with all Long Covid patients, and those who are working tirelessly to put a spotlight on this debilitating illness.
I was fortunate enough to recover after 2 years of struggling with the disease, but most are not so lucky. Just like in 2020, patients around the world are still fighting for recognition, research, and rehabilitation.
Please, support your local or national Long Covid association 
Here I sit - from my ME/CFS photo project
https://glass.photo/andrewgifford/5D3zQsJDl3SDYaWqOGoBHX#9bc0b855-22f3-4cdd-bb42-20b1fcf9f67a
Very grateful to the ME/LC research community and all the nice people who make the Internet a supportive place.
@antiaall3s@chaos.socialI have had #LongCOVID for:
1839 days
or
5 years + 13 days
or
60 months, 13 days
or
44,136 hours
or
2,648,160 min
or
158,889,600 sec
Live in Switzerland
Stop the spread! Wear masks!
It could happen to you.
With everything that we know about this insidious disease, every new case is a crime against public health.
Politicians and physicians, stop ignoring, gaslighting and failing us.
Today, 15 March, 2025, is #LongCOVIDAwarenessDay. We stand with those affected, advocate for research, and raise awareness for better care and recovery. 
