Ik maakte laatst een grapje over een “koken met COVID”-kookboek en toen dachten een paar mensen dat dat echt bestaat en voelde ik me schuldig
It brings me zero joy to be able to say that this was predictable and predicted in 2020.. and every day since
https://www.bbc.com/news/articles/ce8vp560n7vo
“The rising cost of sickness and disability benefits is "devastating" for the public finances,”
One thing I am doing for my ME these days, is remembering to lie down. I was a human doing in my old life and it's sometimes hard to break that cycle. At a few points in the day, i just lie down and it lets me pay attention to my body. If my body says 'yes, this is where i need to be.' I stay there. No guilt. Just rest.
Saturday was Long Covid Awareness Day. As we suffer through the fifth year of the pandemic, thousands are becoming disabled by this illness. I'll have more on the topic soon.
Accepting that today is just kind of a cruddy M.E. day where everything feels thick and buzzed out, including focus and enjoyment.
PLRC Co-Founder Hannah Davis recently spoke to NPR on the current risk of developing #LongCovid —and also a great excerpt from our research partner Dr. Michael Peluso @ucsfmedicine on the state of clinical trials.
Full episode here and in bio:
https://www.npr.org/2025/03/08/nx-s1-5320200/scientists-are-making-progress-in-better-understanding-long-covid
UK politics, social security / benefit payments, mh--, semi-suicide threat, but also stubborn enough to live just to spite the wannabe-tories
... ok so these fuckers really ARE trying to kill us.
relevant af https://www.youtube.com/watch?v=e9ROtVQt98s
I'm so close to the fucking edge this year.
I got a 1 kg bag of tapioca pearls for boba tea to make cheaper at home so I can still have a treat. Saw the price tag and was like "hmmm. *Do* I want / deserve an easy sweet treat I can add nutrient powder to as needed and sip for hydration?"
I got it in the end, but everyone deserves nice things. Yes, even the people you hate. Even the asshole down the street. Maybe if they got nice things and felt nicer, they might be kinder to people around them, idfk.
Labour are brutally gutting diability benefits while allowing many more to become disabled.
Research shows that roughly 1 in 10 people in UK have Long Covid, with many more to follow.
Each infection carries risk, not only for LC but many other sequelae.
Covid is an *ongoing* mass disabling event.
Kennt jemand Arzt oder Ärztin, der / die OM #Saarland bei einer jugendlichen Person #LongCovid / #ChronicFatigue diagnostizieren bzw. ausschließen kann?
#Covid19 hospital acquired infections still a major problem, yet precautions are not protecting vulnerable patients.
"We seem to ignore the people at the centre of this. We're dealing with people losing their lives. [The proposal] might benefit the system, but what harm are we causing to patients?"
#Covid19NZ #CovidIsNotOver #MaskUp #LongCovid #ChronicIllness
@auscovid19
Mask bans already exist in certain States and counties.
Vance spearheaded a federal ban on mask mandates.
Organizing to codify the right to wear medical masks and respirators is (sadly) needed.
Masking is community care and resistance.
Illinois attempting to codify right to mask into law:
@plaguepoems
About 5 years ago (see image below, saved this tweet before I deleted my account) I asked whether COVID would cause more ME/CFS cases and whether anyone was going to study this issue. And I was not the only person asking this!
We now have a study showing that this is indeed what happens 
Among participants infected with SARS-CoV-2 the incidence of ME/CFS is 15 times higher than pre-pandemic rates.
@rchusid@med-mastodon.comStudy suggests that three vaccine doses cut risk of Long Covid by over 60%.
#COVID #LongCovid
https://www.cidrap.umn.edu/covid-19/3-vaccine-doses-cut-long-covid-risk-over-60-analysis-suggests
@Duusi@jorts.horseInternational Long COVID Awareness Day was March 15th.
From the patient-led research collaborative fact sheet:
At least 400 million people globally have Long COVID, and this number is likely a significant undercount. In the US, about 1 in 19 people have Long COVID–the same rate as diabetes. But only 7% of doctors say they’re confident diagnosing Long COVID, and a majority of Long COVID patients report having negative experiences as they attempt to get care.
1/
My friend sent me this today from an amazing snowshoe camping trip we took in 2016.
MECFS has altered my life in such a massive way that I'm sometimes at a loss for words. I would have easily hiked 80-100km in a weekend in spite of some heavy fibromyalgia symptoms back then. Now I'm happy when i can make it around the block.
That being said, I'm not the only one. I have another friend in this photo with a degenerative disorder, and I was worried my hiking buddies would disappear when i got sick and came out as trans. But they are still here and I know how rare that is.
I miss the alpine, I miss the plants, I miss the peace and the beautiful reset it gave my audhd each time, i miss the bonding with my friends, but this photo reminds me that you have to love each moment to its fullest because you never know what's right around the corner and I'm so glad I did.
For anyone looking for a better mask that allows you to smile at people. These are clear ones.
I saw someone at the physical therapy office with this mask on. Glad I asked them about it.
@rchusid@med-mastodon.comFive years later the pandemic has not ended. Deaths occur less often but still too high. Both Trump & Biden have ignored the science, denied the extent or the problem, and have turned Covid into a mass disabling event.
#COVID #LongCovid https://newrepublic.com/article/192738/pandemic-never-ended
(she/her/they) @kshernandez@me.dmHey frens! Zay's in the ER again, complications due to the deadly combo of Long Covid and chronic houselessness. Please, while he's being treated can we pull together enough for a couple weeks?
Every bit counts! And as soon as possible!
Dr. David Putrino: ”There's no such thing as a Covid infection without consequence."
An interview with Dr. Putrino as part of a longer program. This part starts at 19:30, or you can just scroll down to this segment of the show.
https://www.cbc.ca/radio/quirks/mar-15-the-silent-long-term-effects-of-covid-and-more-1.7483146
As far as I know, I've only had COVID once. It was a "mild" case. It didn't feel any worse than a cold and a bit of a sore throat for me. And even though I was fully vaccinated, took Paxlovid right away, and rested very very hard for three months (going to bed whenever I felt even the slightest bit tired), I still ended up with long COVID. I was strong and healthy before. I trained five days a week at the gym and yoga studio and hiked on weekends.
I'm scared shitless about getting COVID again. I'm one of the very few people I know who still masks regularly. #LongCovidAwarenessDay #LongCovid #Covid #MaskUp
