I’m proud to say I just published the fifth and final piece in my series about the experience of accessing healthcare as a disabled person.
This series was difficult to write - because it opened up old wounds. It reminded me of how much gaslighting and abuse I’ve endured at the hands of healthcare workers. It showed me how far I’ve come in becoming a strong and confident advocate.
I thought it might be helpful to list all the articles in one toot - so people can see any they may have missed.
I would encourage everyone to consider sharing with healthcare workers in your life - because my sincere hope is that if they read a first hand account of how these experiences impact a patient - they may approach others differently next time.
I want to thank all the wonderful healthcare workers who’ve cared for me over the years. Who’ve let me be a partner in my care and respected the fact that I know my body best. People like you are the reason I’m still alive - and your kindness and compassion gives me the courage to keep advocating.
To all the patients who’ve had similar experiences, who are scared to go to the hospital or who might be in the hospital now and in need of help…. I hope my series gives you some comfort. I hope it makes you feel less alone and helps provide tips for how to make the experience of going to the hospital a bit safer and easier.
I know how lonely it is to be chronically ill. I know how terrifying it is to give up agency and control to HCWs who may not understand the severity of your disabilities. I see and care about you and I will keep fighting to make our healthcare systems safer for everyone.
Part 1: “Won’t Go to the ER Unless I’m Literally Dying”. https://www.disabledginger.com/p/i-wont-go-to-the-er-unless-im-literally
Part 2: “Tips for Surviving a Hospital Trip when Chronically Ill” https://www.disabledginger.com/p/tips-for-surviving-a-hospital-trip
Part 3: “How to Stay Covid Safe When in Hospital” https://www.disabledginger.com/p/how-to-stay-covid-safe-when-in-hospital
Part 4: “How to be an Effective Advocate for a Disabled Patient.” https://www.disabledginger.com/p/how-to-be-an-effective-advocate-for
Part 5 “My Most Dangerous Hospital Experience and How my Advocate Saved my Life” https://www.disabledginger.com/p/my-most-dangerous-er-experience-and