Pawb.Social Reports @transparency

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Robot DiverOne thing I am doing for my ME these days, is remembering to lie down. I was a human doing in my old life and it's sometimes hard to break that cycle. At a few points in the day, i just lie down and it lets me pay attention to my body. If my body says 'yes, this is where i need to be.' I stay there. No guilt. Just rest. <a href="https://starlite.rodeo/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mecfs</a> <a href="https://starlite.rodeo/tags/longCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longCovid</a> <a href="https://starlite.rodeo/tags/restAggressively" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#restAggressively</a>

Cazimodo CreativeGood morning everyone 🌞 I have just woken up after another day of very low spoons yesterday. I've made an effort to come downstairs as I was missing my parrots. I actually had a dream in which I had gone shopping with Ziggy, who was being so very cute, and we met up with another lady and her boyfriend who were doing parrot displays. Later I found them both on stretchers after some kind of accident and tried to find sticky notes so I could give them my number in case they needed my help. And all the time Zigs was being adorable...so I definitely had to come and see her after that 😊Grant has been doing a good job of looking after me so he's on a well deserved birding walk this morning and a glorious day for it too. I do miss walking. With the river and the forest there are so many good walks around here. Today though, I will continue to take it very easy.Have a lovely day, whatever you get up to 🤗 <a href="https://universeodon.com/tags/Parrots" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Parrots</a> <a href="https://universeodon.com/tags/PetsOfMastodon" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PetsOfMastodon</a> <a href="https://universeodon.com/tags/BirdsOfMastodon" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#BirdsOfMastodon</a> <a href="https://universeodon.com/tags/BirdsOfFediverse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#BirdsOfFediverse</a> <a href="https://universeodon.com/tags/GoodMorning" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#GoodMorning</a> <a href="https://universeodon.com/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mecfs</a>

Will 🏳️‍🌈Are men’s “hot flashes” really a thing?I’m 54. When I take a shower, or eat, or even think about anything physically active, I sweat like crazy within moments, usually on my back and neck plus the usual places. This is to the point where I often need to change t-shirts within about 5-10 minutes. I usually have to be in t-shirts without a jacket, unless it’s around freezing outside. Inside in my upstairs home office, I need the window open most of the time.Been experiencing this most noticeable the last 2-3 years.Not sure if it’s age, fibromyalgia, ME/CFS, something else, or a combination of things.<a href="https://mindly.social/tags/HotFlashes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HotFlashes</a> <a href="https://mindly.social/tags/AskFedi" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#AskFedi</a> <a href="https://mindly.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> <a href="https://mindly.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://mindly.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://mindly.social/tags/AgeRelated" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#AgeRelated</a>

Robot DiverAccepting that today is just kind of a cruddy M.E. day where everything feels thick and buzzed out, including focus and enjoyment. <a href="https://starlite.rodeo/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mecfs</a> <a href="https://starlite.rodeo/tags/fog" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fog</a> <a href="https://starlite.rodeo/tags/brainFog" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#brainFog</a> <a href="https://starlite.rodeo/tags/longCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longCovid</a>

Mx Verda... ok so these fuckers really ARE trying to kill us. <a href="https://www.disabilityrightsuk.org/news/green-paper-published-%E2%80%93-%C2%A35-billion-cuts-proposed-scrapping-wca-and-changed-pip-assessment" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.disabilityrightsuk.org/news/green-paper-published-%E2%80%93-%C2%A35-billion-cuts-proposed-scrapping-wca-and-changed-pip-assessment</a> relevant af <a href="https://www.youtube.com/watch?v=e9ROtVQt98s" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.youtube.com/watch?v=e9ROtVQt98s</a>I'm so close to the fucking edge this year. I got a 1 kg bag of tapioca pearls for boba tea to make cheaper at home so I can still have a treat. Saw the price tag and was like "hmmm. *Do* I want / deserve an easy sweet treat I can add nutrient powder to as needed and sip for hydration?" I got it in the end, but everyone deserves nice things. Yes, even the people you hate. Even the asshole down the street. Maybe if they got nice things and felt nicer, they might be kinder to people around them, idfk.<a href="https://lgbtqia.space/tags/UK" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#UK</a> <a href="https://lgbtqia.space/tags/UKpol" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#UKpol</a> <a href="https://lgbtqia.space/tags/pol" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pol</a> <a href="https://lgbtqia.space/tags/politics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#politics</a> <a href="https://lgbtqia.space/tags/UK_politics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#UK_politics</a> <a href="https://lgbtqia.space/tags/UKpolitics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#UKpolitics</a> <a href="https://lgbtqia.space/tags/DWP" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#DWP</a> <a href="https://lgbtqia.space/tags/PIP" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PIP</a> <a href="https://lgbtqia.space/tags/UC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#UC</a> <a href="https://lgbtqia.space/tags/UniversalCredit" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#UniversalCredit</a> <a href="https://lgbtqia.space/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disability</a> <a href="https://lgbtqia.space/tags/disabled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disabled</a> <a href="https://lgbtqia.space/tags/DisabledSocial" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#DisabledSocial</a> <a href="https://lgbtqia.space/tags/disabilities" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disabilities</a> <a href="https://lgbtqia.space/tags/MassDisablingEvent" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MassDisablingEvent</a> <a href="https://lgbtqia.space/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://lgbtqia.space/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://lgbtqia.space/tags/LearningDifficulty" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LearningDifficulty</a> <a href="https://lgbtqia.space/tags/LearningDisability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LearningDisability</a> <a href="https://lgbtqia.space/tags/SpLDiff" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SpLDiff</a> <a href="https://lgbtqia.space/tags/SpecificLearningDifficulty" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SpecificLearningDifficulty</a> <a href="https://lgbtqia.space/tags/money" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#money</a> <a href="https://lgbtqia.space/tags/cash" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#cash</a> <a href="https://lgbtqia.space/tags/currency" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#currency</a> <a href="https://lgbtqia.space/tags/policy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#policy</a> <a href="https://lgbtqia.space/tags/PolicyAnalysis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PolicyAnalysis</a> <a href="https://lgbtqia.space/tags/spending" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spending</a> <a href="https://lgbtqia.space/tags/budget" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#budget</a> <a href="https://lgbtqia.space/tags/economy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#economy</a> <a href="https://lgbtqia.space/tags/equality" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#equality</a> <a href="https://lgbtqia.space/tags/inequality" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#inequality</a> <a href="https://lgbtqia.space/tags/benefits" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#benefits</a> <a href="https://lgbtqia.space/tags/BenefitsCuts" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#BenefitsCuts</a> <a href="https://lgbtqia.space/tags/BenefitsClaimants" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#BenefitsClaimants</a> <a href="https://lgbtqia.space/tags/illness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#illness</a> <a href="https://lgbtqia.space/tags/ChronicHealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicHealth</a> <a href="https://lgbtqia.space/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicPain</a> <a href="https://lgbtqia.space/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllness</a>

Dr Ro SmithI'm fucked off by the rhetoric I'm hearing from the Labour leadership. It's beyond disgusting. I don't have the brain right now to articulate why, but I would ask all UK citizens (you don't have to currently be in the UK, just a citizen) to sign this: <a href="https://petition.parliament.uk/petitions/713868" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://petition.parliament.uk/petitions/713868</a><a href="https://wandering.shop/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disability</a> <a href="https://wandering.shop/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://wandering.shop/tags/MentalHealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MentalHealth</a> <a href="https://wandering.shop/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#COVID</a>

Cazimodo CreativeGood morning everyone 🌞 I am still laid up today, but starting to feel a little bit more human after a lot of rest. Grant has taken carer's leave to look after me, and most importantly the parrots ☺️ Hopefully we will all be back to normal soon. Thanks to everyone for the well wishes. You are very lovely 💕<a href="https://universeodon.com/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a>

ahimsa<a href="https://mastodon.social/@plaguepoems" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@plaguepoems</a> About 5 years ago (see image below, saved this tweet before I deleted my account) I asked whether COVID would cause more ME/CFS cases and whether anyone was going to study this issue. And I was not the only person asking this!We now have a study showing that this is indeed what happens 😢Among participants infected with SARS-CoV-2 the incidence of ME/CFS is 15 times higher than pre-pandemic rates.<a href="https://batemanhornecenter.org/covid-19-triggers-me-cfs/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://batemanhornecenter.org/covid-19-triggers-me-cfs/</a><a href="https://disabled.social/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#COVID19</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/CovdIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CovdIsNotOver</a>

Mx. Luna CorbdenHere's a little executive function tip based on my Splines Theory.If you're having trouble starting a complicated and boring task, give yourself time to "load the splines." Splines are just my silly word representing the fact that ADHD and autistic people are more detail-oriented. We have a hard time accessing an idea by its summary, and need to think about the whole system with all its parts (splines) in order to grapple it. This takes time and energy.But the good news is, reticulating splines is mostly a passive activity. First step, the hardest, is communicating to your brain about what it needs to load. A few hours ago when I started gathering paperwork for taxes, I felt incredibly overwhelmed and my chronic pain was activated. So I pushed myself to kinda get started (updating my list from last year, opening the email folder, creating some folders on my computer), but then I hit a wall. Under intense overwhelm, I couldn't get started turning those emails into PDFs.But my brain knows what it needs to do. It just needed time. I entered my passive splines reticulating phase, which can take anywhere from a few hours to a few days. Since I only have a week to get this to my CPA, the sooner I started the loading process, the better. Most of that happens in the background. The hardest part was telling my brain to start, which I did by giving a glance to the body of details I will need to absorb.Then I went did a couple of hours of paid writing work which my brain normally expects on a Monday (so that went easier). And then back to taxes to see if things were flowing better.And they are! I still hate it! But now my mind has an understanding of the task and it doesn't seem impossible.I will work on it until I feel sick and foggy again, then I will pick up tomorrow where I expect it to go even more smoothly.Here's my 2013 post on Splines Theory of neurodiverse executive function.<a href="https://defcon.social/tags/taxes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#taxes</a> <a href="https://defcon.social/tags/ADHD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ADHD</a> <a href="https://defcon.social/tags/ActuallyAutistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ActuallyAutistic</a> <a href="https://defcon.social/tags/pacing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pacing</a> <a href="https://defcon.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a><a href="https://www.corbden.com/2013/10/splines-theory-spoons-metaphor-for.html" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.corbden.com/2013/10/splines-theory-spoons-metaphor-for.html</a>

Robot DiverMy friend sent me this today from an amazing snowshoe camping trip we took in 2016. MECFS has altered my life in such a massive way that I'm sometimes at a loss for words. I would have easily hiked 80-100km in a weekend in spite of some heavy fibromyalgia symptoms back then. Now I'm happy when i can make it around the block.That being said, I'm not the only one. I have another friend in this photo with a degenerative disorder, and I was worried my hiking buddies would disappear when i got sick and came out as trans. But they are still here and I know how rare that is. I miss the alpine, I miss the plants, I miss the peace and the beautiful reset it gave my audhd each time, i miss the bonding with my friends, but this photo reminds me that you have to love each moment to its fullest because you never know what's right around the corner and I'm so glad I did.<a href="https://starlite.rodeo/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mecfs</a> <a href="https://starlite.rodeo/tags/longCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longCovid</a> <a href="https://starlite.rodeo/tags/alpine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#alpine</a> <a href="https://starlite.rodeo/tags/backcountry" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#backcountry</a> <a href="https://starlite.rodeo/tags/hiking" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#hiking</a>

Robot DiverA day or two of exhaustion is worth the social battery top up of an afternoon with friends. But man am I tired.<a href="https://starlite.rodeo/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mecfs</a> <a href="https://starlite.rodeo/tags/friends" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#friends</a>

ahimsaMore quotes:"Check out other organizations that fight for Long COVID day in and day out including: Black Long COVID Experience, COVID-19 Longhaulers Advocacy Project, Long COVID Families and Patient-led Research Collaborative, among others! Share information, check out these groups, donate today!Long COVID research care and treatments matter for everyone."<a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> 3/3<a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/Awareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Awareness</a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllness</a> <a href="https://disabled.social/tags/StopRestPace" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#StopRestPace</a> <a href="https://disabled.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovidAwarenessDay</a>

ahimsa<a href="https://disabled.social/tags/MEAction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEAction</a> has been fighting to protect the Long COVID Advisory Committee at HHS, which was recently dismantled. In this video, five patient-advocates read an open letter to Health and Human Services Secretary Robert F. Kennedy Jr.<a href="https://www.youtube.com/watch?v=hQn3kqyAT6w" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.youtube.com/watch?v=hQn3kqyAT6w</a><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> 2/3<a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/Awareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Awareness</a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllness</a> <a href="https://disabled.social/tags/StopRestPace" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#StopRestPace</a> <a href="https://disabled.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovidAwarenessDay</a> <a href="https://disabled.social/tags/USPol" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#USPol</a>

ahimsaFrom <a href="https://disabled.social/tags/MEAction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEAction</a>: Long COVID Awareness Day March 15<a href="https://www.meaction.net/2025/03/14/long-covid-awareness-day/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.meaction.net/2025/03/14/long-covid-awareness-day/</a>"Today is Long COVID Awareness day, and we want to lift up the importance of Long COVID advocacy. We ask you to share this video created by <a href="https://disabled.social/tags/MEAction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEAction</a> volunteers today."Link to video in next post<a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> 1/3<a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/Awareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Awareness</a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllness</a> <a href="https://disabled.social/tags/StopRestPace" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#StopRestPace</a> <a href="https://disabled.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovidAwarenessDay</a>

Will 🏳️‍🌈PEM is a real bummer.Early last night, I felt the vibe to dance for an hour while sitting on my office chair to a new favorite DJ set. At the time, it felt great to get a bit of exercise. But now, I hurt everywhere and my mental ability is almost nonexistent. Needless to say, I’m confined to bed right now.I just hope I haven’t reduced my baseline yet again. I was being so careful for months now.<a href="https://mindly.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://mindly.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://mindly.social/tags/PostExertionalMalaise" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PostExertionalMalaise</a> <a href="https://mindly.social/tags/PEM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PEM</a>

Andrew Gifford ME/CFS photosHere I sit - from my ME/CFS photo project<a href="https://glass.photo/andrewgifford/5D3zQsJDl3SDYaWqOGoBHX#9bc0b855-22f3-4cdd-bb42-20b1fcf9f67a" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://glass.photo/andrewgifford/5D3zQsJDl3SDYaWqOGoBHX#9bc0b855-22f3-4cdd-bb42-20b1fcf9f67a</a>Very grateful to the ME/LC research community and all the nice people who make the Internet a supportive place.<a href="https://mastodon.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovidAwarenessDay</a> <a href="https://mastodon.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://mastodon.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://mastodon.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://mastodon.social/tags/Photography" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Photography</a> <a href="https://mastodon.social/tags/MECFSart" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFSart</a>

Chronic Illness Humor Funny<a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnessmemes</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnesshumor</a> <a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://mastodon.social/tags/spoonielife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonielife</a> <a href="https://mastodon.social/tags/spooniememes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spooniememes</a> <a href="https://mastodon.social/tags/cfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#cfs</a> <a href="https://mastodon.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mecfs</a> <a href="https://mastodon.social/tags/cfsmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#cfsmemes</a> <a href="https://mastodon.social/tags/cfshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#cfshumor</a> <a href="https://mastodon.social/tags/mecfshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mecfshumor</a> <a href="https://mastodon.social/tags/mecfsmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mecfsmemes</a> <a href="https://mastodon.social/tags/fatiguememes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fatiguememes</a> <a href="https://mastodon.social/tags/fatiguehumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fatiguehumor</a>

Tom KindlonFrom Iraq:Increased galanin-galanin receptor 1 signaling, inflammation, and insulin resistance are associated with affective symptoms and chronic fatigue syndrome due to long COVID<a href="https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0316373" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0316373</a>From the latest Science for ME weekly update<a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PASC</a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwLC</a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#postcovid</a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#postcovid19</a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LC</a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Covidlonghaulers</a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PostCovidSyndrome</a> <a href="https://disabled.social/tags/longhaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longhaulers</a> <a href="https://disabled.social/tags/COVIDBrain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#COVIDBrain</a> <a href="https://disabled.social/tags/NeuroPASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NeuroPASC</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a>

tj (i make it past the end)the author of the article i shared above needs help! Critical Healthcare Support for Victoria<a href="https://www.gofundme.com/f/help-vs-medical-expenses" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.gofundme.com/f/help-vs-medical-expenses</a>Venmo: itssvee<a href="https://diaspora.im/tags/BlackMutualAid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#BlackMutualAid</a> <a href="https://diaspora.im/tags/MutualAid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MutualAid</a> <a href="https://diaspora.im/tags/Disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Disability</a> <a href="https://diaspora.im/tags/DisabilityCrowdfund" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#DisabilityCrowdfund</a> <a href="https://diaspora.im/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://diaspora.im/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://diaspora.im/tags/Dysautonomia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Dysautonomia</a> <a href="https://diaspora.im/tags/EhlersDanlos" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EhlersDanlos</a> <a href="https://diaspora.im/tags/Hashimotos" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Hashimotos</a> <a href="https://diaspora.im/tags/HashimotosDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HashimotosDisease</a> <a href="https://diaspora.im/tags/MastCell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MastCell</a> <a href="https://diaspora.im/tags/MastCellDisorder" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MastCellDisorder</a>

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