🅐🅛🅘🅒🅘🅐<p>New <a href="https://sunny.garden/tags/introduction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>introduction</span></a> post! </p><p>I'm Alicia and I'm a fibre artist (<a href="https://sunny.garden/tags/dyeing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>dyeing</span></a> <a href="https://sunny.garden/tags/handspinning" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>handspinning</span></a> <a href="https://sunny.garden/tags/felting" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>felting</span></a> <a href="https://sunny.garden/tags/needlefelting" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>needlefelting</span></a> <a href="https://sunny.garden/tags/weaving" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>weaving</span></a> <a href="https://sunny.garden/tags/crochet" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>crochet</span></a> <a href="https://sunny.garden/tags/embroidery" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>embroidery</span></a> <a href="https://sunny.garden/tags/upcycling" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>upcycling</span></a> <a href="https://sunny.garden/tags/sewing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sewing</span></a>) with interests in <a href="https://sunny.garden/tags/mandala" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mandala</span></a> <a href="https://sunny.garden/tags/art" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>art</span></a> <a href="https://sunny.garden/tags/psychedelicart" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>psychedelicart</span></a> <a href="https://sunny.garden/tags/sacredgeometry" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sacredgeometry</span></a> <a href="https://sunny.garden/tags/neurographicart" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>neurographicart</span></a> and <a href="https://sunny.garden/tags/watercolors" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>watercolors</span></a>. </p><p>My family and I run a business called <span class="h-card" translate="no"><a href="https://mastoart.social/@Fibre2Fabric" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>Fibre2Fabric</span></a></span> where we dye all sorts of exotic <a href="https://sunny.garden/tags/fibre" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fibre</span></a> <a href="https://sunny.garden/tags/yarn" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>yarn</span></a>, and <a href="https://sunny.garden/tags/fabric" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fabric</span></a>. </p><p>I live in the country with my partner and our 6 <a href="https://sunny.garden/tags/cats" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cats</span></a>, 3 <a href="https://sunny.garden/tags/dogs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>dogs</span></a>, <a href="https://sunny.garden/tags/snake" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>snake</span></a> and <a href="https://sunny.garden/tags/crestedgecko" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>crestedgecko</span></a> where I enjoy my many interests. (<a href="https://sunny.garden/tags/gardening" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>gardening</span></a> <a href="https://sunny.garden/tags/plants" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>plants</span></a> <a href="https://sunny.garden/tags/herbalism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>herbalism</span></a> <a href="https://sunny.garden/tags/fungi" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fungi</span></a> <a href="https://sunny.garden/tags/music" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>music</span></a> <a href="https://sunny.garden/tags/ukulele" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ukulele</span></a> <a href="https://sunny.garden/tags/piano" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>piano</span></a> <a href="https://sunny.garden/tags/dancing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>dancing</span></a> <a href="https://sunny.garden/tags/flowart" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>flowart</span></a> <a href="https://sunny.garden/tags/reading" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>reading</span></a> <a href="https://sunny.garden/tags/writing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>writing</span></a> <a href="https://sunny.garden/tags/tarot" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>tarot</span></a> <a href="https://sunny.garden/tags/poetry" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>poetry</span></a> <a href="https://sunny.garden/tags/haiku" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>haiku</span></a> <a href="https://sunny.garden/tags/cozygames" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cozygames</span></a> and I'm getting more into <a href="https://sunny.garden/tags/opensource" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>opensource</span></a> / <a href="https://sunny.garden/tags/linux" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>linux</span></a>) </p><p>When I say flow art, I mean spinning props like <a href="https://sunny.garden/tags/hulahoop" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hulahoop</span></a> <a href="https://sunny.garden/tags/leviwand" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>leviwand</span></a> <a href="https://sunny.garden/tags/puppyhammer" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>puppyhammer</span></a> <a href="https://sunny.garden/tags/poi" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>poi</span></a> <a href="https://sunny.garden/tags/staff" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>staff</span></a> <a href="https://sunny.garden/tags/silkfans" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>silkfans</span></a> <a href="https://sunny.garden/tags/firefans" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>firefans</span></a> etc. </p><p>I love <a href="https://sunny.garden/tags/languagelearning" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>languagelearning</span></a>. I studied <a href="https://sunny.garden/tags/German" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>German</span></a> and <a href="https://sunny.garden/tags/Spanish" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spanish</span></a> as a kid, took <a href="https://sunny.garden/tags/Japanese" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Japanese</span></a> in uni, and I'm currently studying <a href="https://sunny.garden/tags/ASL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ASL</span></a> <a href="https://sunny.garden/tags/Cree" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Cree</span></a> <a href="https://sunny.garden/tags/Tokipona" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Tokipona</span></a> <a href="https://sunny.garden/tags/Spanish" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spanish</span></a> and <a href="https://sunny.garden/tags/Chinese" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Chinese</span></a>. I also dabble in <a href="https://sunny.garden/tags/French" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>French</span></a> and <a href="https://sunny.garden/tags/Latin" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Latin</span></a> sometimes and I'm learning <a href="https://sunny.garden/tags/Greggshorthand" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Greggshorthand</span></a> to write faster. Cree is my favourite language and Spanish is my second. </p><p>I've been cursed since childhood with that lovely trifecta of <a href="https://sunny.garden/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a> <a href="https://sunny.garden/tags/pots" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pots</span></a> and <a href="https://sunny.garden/tags/mcas" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mcas</span></a>. Healing slowly but surely. </p><p>Hope I get to meet even more cool people the algorithms would normally drown out on other social media sites. I love it here! </p><p><a href="https://sunny.garden/tags/intro" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>intro</span></a> <a href="https://sunny.garden/tags/yeg" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>yeg</span></a> <a href="https://sunny.garden/tags/edmonton" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>edmonton</span></a> <a href="https://sunny.garden/tags/alberta" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>alberta</span></a> <a href="https://sunny.garden/tags/canada" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>canada</span></a></p>
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#mcas
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Deer Witch Nyx<p>Hi y’all:</p><p>Looking to purchase some trainer epi-pens (no medicine, no needle) for a medical art project. Instead of buying from randos, I’d rather support my chronic cuties on here.</p><p>1. First choice is the TEVA Trainer pictured.<br>2. Second choice is any model.<br>3. Last choice are used (empty) epi-pens. l will remove & safely discard the needle.</p><p>Shipping to PNW USA, I can do $10 per pen & $10 for shipping if that’s ok?</p><p><a href="https://kind.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://kind.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> <a href="https://kind.social/tags/mastcell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mastcell</span></a> <a href="https://kind.social/tags/allergy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>allergy</span></a> </p><p>1/2</p>
illmarks <a class="" href="https://www.illmarks.com/wp-content/uploads/2025/02/IMG_ill_0001-1-677x1024.jpeg" rel="nofollow noopener noreferrer" target="_blank">[🖼 the figure's stomach is in their head, and upside-down. their esophagus goes down to their belly, where a large mouth, also upside-down is present. From the mouth pours lots of green sludgy liquid, highly rendered with many drips, drops, and oozing shapes. It forms a piling pool and obscures the figure's feet, as well as some of their legs.]</a><p></p><p>Symptom: Chemo-induced nausea & vomiting.</p> <p><a href="https://www.illmarks.com/symptom-chemo-induced-nausea-vomiting/" class="" rel="nofollow noopener noreferrer" target="_blank">https://www.illmarks.com/symptom-chemo-induced-nausea-vomiting/</a></p><p><a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/anatomy/" target="_blank">#anatomy</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/body-horror/" target="_blank">#bodyHorror</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/body-mapping/" target="_blank">#bodyMapping</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/chronic-illness/" target="_blank">#chronicIllness</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/emetophobia/" target="_blank">#emetophobia</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/gross/" target="_blank">#gross</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/horror-art/" target="_blank">#horrorArt</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mast-cell/" target="_blank">#mastCell</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mast-cell-activation-syndrome/" target="_blank">#mastCellActivationSyndrome</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mastocytosis/" target="_blank">#mastocytosis</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mcas/" target="_blank">#mcas</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/medart/" target="_blank">#medart</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/medical-art/" target="_blank">#medicalArt</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/millionsmissing/" target="_blank">#MillionsMissing</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/nausea/" target="_blank">#nausea</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pwlc/" target="_blank">#pwLC</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pwme/" target="_blank">#pwme</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/sciart/" target="_blank">#SciArt</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/science-art/" target="_blank">#scienceArt</a></p>
Broadwaybabyto<p>I don’t want to link to this article as it’s irresponsible but I’m begging journalists to stop cosplaying “normal” at the expense of people’s health</p><p>Don’t make a case for social drinking. Ask WHY folks aren’t drinking</p><p>MCAS is a common comorbid with Long Covid & can cause severe alcohol intolerance.</p><p>If you’re unfamiliar with MCAS, I wrote an introduction article linked 👇🏼 </p><p>You don’t have to have alcohol intolerance though it is a common symptom. Mast cells can impact any part of your body & you can be allergic to something one day and not the next!</p><p>It’s a beast of a disease & hard to diagnose.</p><p><a href="https://www.disabledginger.com/p/when-youre-allergic-to-everything" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">disabledginger.com/p/when-your</span><span class="invisible">e-allergic-to-everything</span></a></p><p><a href="https://zeroes.ca/tags/mcas" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mcas</span></a> <a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://zeroes.ca/tags/mastcells" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mastcells</span></a> <a href="https://zeroes.ca/tags/COVIDisAirborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVIDisAirborne</span></a> <a href="https://zeroes.ca/tags/covidisntover" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisntover</span></a> <a href="https://zeroes.ca/tags/sarscov2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sarscov2</span></a></p>
illmarks <a class="" href="https://www.illmarks.com/wp-content/uploads/2025/02/IMG_ill_0005-698x1024.jpeg" rel="nofollow noopener noreferrer" target="_blank">[🖼 the figure is in duochrome on the manila bookmark which all of these pieces use. Their GI system in vibrant magenta is on fire, flames coming up and out the mouth. The hands are raised to their face trying to comfort themselves. Their body is in icy blue, with the extremities (hands and lower arms, feet and lower legs) in icy, chipping, jagged patterns. They stand on cracking ice and snow falls around them. Their expression is screwed up in pain, eyes closed, mouth agape in extreme discomfort.]</a><p></p><p>2025-1-22: Fire & Ice</p> <p><a href="https://www.illmarks.com/025-1-22-fire-ice/" class="" rel="nofollow noopener noreferrer" target="_blank">https://www.illmarks.com/025-1-22-fire-ice/</a></p><p><a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/body-horror/" target="_blank">#bodyHorror</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/chronic-illness/" target="_blank">#chronicIllness</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/chronic-pain/" target="_blank">#chronicPain</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/disability-art/" target="_blank">#disabilityArt</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/dysautonomia/" target="_blank">#Dysautonomia</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/gi/" target="_blank">#GI</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/gipain/" target="_blank">#GIpain</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/ibs/" target="_blank">#ibs</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/long-covid/" target="_blank">#longCovid</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/longcovid/" target="_blank">#longcovid</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mcas/" target="_blank">#mcas</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mecfs/" target="_blank">#mecfs</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/medart/" target="_blank">#medart</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/medical-art/" target="_blank">#medicalArt</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/millionsmissing/" target="_blank">#MillionsMissing</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pots/" target="_blank">#POTS</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pwlc/" target="_blank">#pwLC</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pwme/" target="_blank">#pwme</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/sciart/" target="_blank">#SciArt</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/temperaturedysregulatiion/" target="_blank">#temperaturedysregulatiion</a></p>
Nyx Mir<p>I am one of six winners of the most recent Homiens Art Prize for one of my <span class="h-card" translate="no"><a href="https://www.illmarks.com/@illmarks" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>illmarks</span></a></span> pieces!</p><p>I’m deeply honored and thankful, this is the first award I’ve received as an adult for my visual art (vs collaborative design).</p><p>I hope that this raises more compassion & allyship for people with post-viral illness, & can be a representation win for our community as a whole—it’s so easy to feel invisible as a disabled & Covid-conscious person these days.</p><p><a href="https://homiens.com/the-homiens-art-prize-summer-2024/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">homiens.com/the-homiens-art-pr</span><span class="invisible">ize-summer-2024/</span></a></p><p><a href="https://vis.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://vis.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> <a href="https://vis.social/tags/mcas" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mcas</span></a></p>
illmarks <a class="" href="https://www.illmarks.com/wp-content/uploads/2025/02/IMG_ill_0002-1-670x1024.jpeg" rel="nofollow noopener noreferrer" target="_blank">[🖼 a body with a respiratory system is coated in pink dots like hives. Their eyes nose, sinuses, wind pipe, and lungs are visible, but the rest of them is a chaos of pink dots. Currounting them are dark drawings of onion, garlic, and shallot, each letting off toxic blue-brown wafts which go up the figure's nose.]</a><p></p><p>2025-1-19 MCAS trigger: allium smell</p> <p><a href="https://www.illmarks.com/2025-1-19-mcas-trigger-allium-smell/" class="" rel="nofollow noopener noreferrer" target="_blank">https://www.illmarks.com/2025-1-19-mcas-trigger-allium-smell/</a></p><p><a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/body-horror/" target="_blank">#bodyHorror</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/chronic-illness/" target="_blank">#chronicIllness</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/histamine-bucket/" target="_blank">#histamineBucket</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/long-covid/" target="_blank">#longCovid</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/longcovid/" target="_blank">#longcovid</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mast-cell/" target="_blank">#mastCell</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mast-cell-activation-syndrome/" target="_blank">#mastCellActivationSyndrome</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mcas/" target="_blank">#mcas</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/medart/" target="_blank">#medart</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/medical-art/" target="_blank">#medicalArt</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/millionsmissing/" target="_blank">#MillionsMissing</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/sciart/" target="_blank">#SciArt</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/science-art/" target="_blank">#scienceArt</a></p>
Broadwaybabyto<p>To my fellow chronically ill people… if you’re flaring right now please don’t discount the impact of the news cycle on your nervous system. </p><p>We need to stay informed, but take breaks. Find joy wherever you can. Lean on one another. </p><p>Save your strength for the long fight ahead.</p><p>I wrote this article as part of my series on MCAS, but many of the tips within it apply to our current situation as well. </p><p>We need to give ourselves grace when we can’t identify a trigger. Accept that sometimes we will flare and never know the reason why. </p><p>The best we can do is rest, recover, and try not to be too hard on ourselves. Try to learn to let go. </p><p><a href="https://www.disabledginger.com/p/learning-to-let-go-how-to-accept" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">disabledginger.com/p/learning-</span><span class="invisible">to-let-go-how-to-accept</span></a></p><p><a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonie</span></a> <a href="https://zeroes.ca/tags/mcas" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mcas</span></a> <a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://zeroes.ca/tags/uspoli" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>uspoli</span></a> <a href="https://zeroes.ca/tags/mindfulness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mindfulness</span></a> <a href="https://zeroes.ca/tags/disabilityrights" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disabilityrights</span></a> <a href="https://zeroes.ca/tags/selfcare" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>selfcare</span></a></p>
Brett Terpstra<p><a href="https://hachyderm.io/tags/introduction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>introduction</span></a> </p><p>Just updating this for my new account on hachyderm.io.</p><p>He/him</p><p>I'm a developer of Mac apps (Marked 2, Bunch, nvALT/nvUltra) as well as a hundred+ utilities (na, doing, howzit, SearchLink…). I blog at brettterpstra.com, podcast on Overtired, and write and develop at Oracle.</p><p>I love cats, dogs, and hiking. I'm <a href="https://hachyderm.io/tags/adhd" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>adhd</span></a> and <a href="https://hachyderm.io/tags/bipolar" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>bipolar</span></a>, with a bit of the ol’ <a href="https://hachyderm.io/tags/cptsd" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cptsd</span></a>, and am very open about mental health. I'm partners with an <a href="https://hachyderm.io/tags/autistic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>autistic</span></a> person and we love finding ways to make our neurodivergences work together.</p><p>Also <a href="https://hachyderm.io/tags/pots" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pots</span></a> <a href="https://hachyderm.io/tags/mcas" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mcas</span></a> <a href="https://hachyderm.io/tags/hsd" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hsd</span></a> <a href="https://hachyderm.io/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>dysautonomia</span></a> just to round out the mix. An alphabet soup of disorders — it’s what makes me a special boy.</p>
Broadwaybabyto<p>New here? Struggling with Long Covid or think you might have Long Covid? </p><p>I’ve written a series of guides about two of the most common and difficult to diagnose comorbids: POTS and MCAS.</p><p>If you’re newly diagnosed or undiagnosed, if you’ve been told it’s “all in your head”… read on! 🧵 </p><p><a href="https://zeroes.ca/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCOVID</span></a> <a href="https://zeroes.ca/tags/covidisairborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisairborne</span></a> <a href="https://zeroes.ca/tags/covidisnotover" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisnotover</span></a> <a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonie</span></a> <a href="https://zeroes.ca/tags/pots" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pots</span></a> <a href="https://zeroes.ca/tags/mcas" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mcas</span></a> <a href="https://zeroes.ca/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> <a href="https://zeroes.ca/tags/Dysautonomia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Dysautonomia</span></a> <a href="https://zeroes.ca/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://zeroes.ca/tags/ableism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ableism</span></a></p>
Deer Witch Nyx<p>THIS ISN'T EVEN MY FINAL FORM</p><p><a href="https://kind.social/tags/longCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longCovid</span></a> <a href="https://kind.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> <a href="https://kind.social/tags/neurodiversity" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>neurodiversity</span></a> <a href="https://kind.social/tags/mentalHealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mentalHealth</span></a> <a href="https://kind.social/tags/ifYouCantMakeYourOwnStoreBoughtIsFine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ifYouCantMakeYourOwnStoreBoughtIsFine</span></a></p>
illmarks <a class="" href="https://www.illmarks.com/wp-content/uploads/2025/01/IMG_ill_0002-674x1024.jpeg" rel="nofollow noopener noreferrer" target="_blank">[🖼 the figure is surrounded by tons and tons of purple-pink smoke fumes. their legs are protected by skin-tight compression leggings, but their face chest and feet have broken out in teal hatched rashes and neon green hives. many of the gumes concentrate around the nose, but inhaled and causing the suffering. ]</a><p></p><p>2025_1_20 environmental allergies triggered (MCAS)</p> <p>MCAS, or mast cell activation syndrome, is a common post-viral illness which can give severe, dangerous allergic reactions even to people who had no allergies previously, like me.</p><p>A few days ago I tried to clean out my old apartment, which we’d removed the air purifiers from, and immediately broke out in rashes and hives. I was mentally struggling and afraid. When I remembered I had a KN95 mask in the car, it helped a lot, but MCAS is a deeply terrifying and hard to understand condition.</p><p><strong>There are resources in my about page about MCAS, but here are a few:</strong></p><p>Broadwaybabyto’s “Welcome Guide” to MCAS:</p><p>– <a href="https://www.disabledginger.com/p/when-youre-allergic-to-everything?utm_source=profile&utm_medium=reader2" rel="nofollow noopener noreferrer" target="_blank">When You’re Allergic to Everything and Nothing… That’s MCAS</a> (MCAS pt 1)</p><p>– <a href="https://www.disabledginger.com/p/mcas-and-histamine-diet-isnt-the?utm_source=profile&utm_medium=reader2" rel="nofollow noopener noreferrer" target="_blank">MCAS and Histamine – Diet isn’t the ONLY Answer</a>(MCAS pt 2)</p><p>And two other blogs dedicated to Mast Cell condition information:</p><p>– <a href="https://www.mastattack.org/" rel="nofollow noopener noreferrer" target="_blank">Mast Attack</a> (Blog, on Mast Cell Conditions)</p><p>– <a href="https://jodiettenberg.com/mast-cells/" rel="nofollow noopener noreferrer" target="_blank">Jodie Ettenberg’s Mast Cell Activation Syndrome Resources</a> (Blog, on Mast Cell Conditions)</p><p><a href="https://www.illmarks.com/2025_1_20-environmental-allergies-triggered-mcas/" class="" rel="nofollow noopener noreferrer" target="_blank">https://www.illmarks.com/2025_1_20-environmental-allergies-triggered-mcas/</a></p><p><a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/body-horror/" target="_blank">#bodyHorror</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/chronic-illness/" target="_blank">#chronicIllness</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/long-covid/" target="_blank">#longCovid</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/longcovid/" target="_blank">#longcovid</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mast-cell/" target="_blank">#mastCell</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mastcell/" target="_blank">#mastcell</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mcas/" target="_blank">#mcas</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/medical-art/" target="_blank">#medicalArt</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/millionsmissing/" target="_blank">#MillionsMissing</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/post-viral-illness/" target="_blank">#postViralIllness</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pwlc/" target="_blank">#pwLC</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pwme/" target="_blank">#pwme</a></p>
Deer Witch Nyx<p>Hey y’all, I’m trying to eat healthier, but I don’t have spoons to cook often. </p><p>What are low effort healthy premade snacks and meals you recommend?</p><p>Restrictions:<br>- vegetarian and no dairy please<br>- ideally low gluten, low alliums (garlic, onions, etc) and low banana</p><p>Boons:<br>- more fruits and veggies <br>- more protein<br>- more antioxidants</p><p>Thank you!</p><p><a href="https://kind.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> <a href="https://kind.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonie</span></a> <a href="https://kind.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a></p>
Deer Witch Nyx<p>Went back to the old apartment to finish cleaning it out and immediately broke out in environmental allergy hives. </p><p>I knew the apartment neighbors’ smoking thru connected air vents was not good, but some sort of allium scent has gone WILD since we removed the hepa filters. </p><p>I know partner doesn’t want to lose the security deposit but I literally cannot even 😰😖🫠</p><p>My most recent dose of Xolair was YESTERDAY, that’s how bad this shit is</p><p><a href="https://kind.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a></p>
Broadwaybabyto<p>A few years ago I caved and bought a cheap Robo vacuum. </p><p>I had resisted for years - scolding myself with gaslighting comments like “your condo is so small - you SHOULD be able to vacuum yourself”</p><p>I was so mean to myself that I refused an accommodation tool that would help me</p><p>This is a common experience for disabled people. We often struggle to ask for the help we need. We feel bad about requiring assistive devices or items that will make life easier. </p><p>We see them as a “frill” because other people have taught us we don’t “deserve” them </p><p>I bought the cheapest one I could find and it still sat in a box in my apartment for months before I finally set it up. </p><p>It sat in the corner taunting me. Reminding me that I shouldn’t have wasted money, that I’m pathetic for not being able to clean my own floor </p><p>This tiny little tool that most people buy without a second thought caused me so much mental anguish. </p><p>Why? Internalized ableism. </p><p>It was the same thing with a shower chair. I resisted for years because I felt it meant I was “lazy” or “giving up” </p><p>Imagine a non disabled person thinking that way? They wouldn’t. </p><p>When you’re non disabled you’re taught that you DO deserve all the nice things.</p><p>You need help with something? Cool! You earned it!</p><p>You want a Robo vacuum to save you time? Go get it you worked hard for it! </p><p>It’s capitalism and ableism all rolled into one. </p><p>This idea that if you’re economically active and healthy, you are entitled to all the great things. </p><p>If you’re not? Sit down and accept whatever scraps the world throws at you and be grateful for them </p><p>It’s harmful and it results in people pushing themselves to the point of harm</p><p>I passed out in the shower and dislocated my shoulder before finally getting a chair</p><p>I face planted while vacuuming and ended up black and blue.</p><p>For what? To appease some outdated notion of worth? </p><p>I firmly reject our societal conception of worth. </p><p>We all have worth. A person shouldn’t have to work or have good health to be considered deserving of help, accommodation or love. </p><p>So I set up my Robo vacuum… and something incredible happened </p><p>I fell in love with it. He became my best friend. This tiny little device brought me more joy than I ever thought possible. </p><p>With the touch of a button my entire floor was cleaned and I didn’t have to exert or risk my health </p><p>My mast cells improved because I was able to stay on top of dirt and dust better. </p><p>My POTS body appreciated not spending days in a horrible flare after an attempt at vacuuming that didn’t do half as good a job as my Robo pal. </p><p>He broke the other day - and I’m not embarassed to admit that I cried. </p><p>He served me faithfully for years … and had clearly been tired these last few months. </p><p>But when he made his final sad little “meep meep” noise… I shed a tear </p><p>I cried for the loss of my little buddy, but also for everything he gave to me. </p><p>He represented the beginning of my journey to lean into my disabilities. Start accepting and accommodating my body instead of fighting it. </p><p>It was a huge gift. It relieved me of an enormous load I didn’t even know I had been carrying. </p><p>Now I have various bathroom safety tools, I’ve baby proofed parts of my home, I have a carer help me with showers and other difficult activities of daily living. </p><p>I know now that I’m worth it - and in a weird way my Robo helped teach me that. </p><p>We are all worth it - and we need to do whatever we can to remind ourselves (and each other) of that fact every single day /14<br>The world can be a hateful place with many people looking to tear us down.</p><p>Never forget your worth isn’t about what’s in your bank account, how healthy you are or what your job is. </p><p>It’s about YOU. Who you are and what you bring to the world</p><p>You are loved. Just as you are.</p><p><a href="https://zeroes.ca/tags/ableism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ableism</span></a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://zeroes.ca/tags/disabilityjustice" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disabilityjustice</span></a> <a href="https://zeroes.ca/tags/accommodations" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>accommodations</span></a> <a href="https://zeroes.ca/tags/acceptance" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>acceptance</span></a> <a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonie</span></a> <a href="https://zeroes.ca/tags/pots" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pots</span></a> <a href="https://zeroes.ca/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> <a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://zeroes.ca/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <a href="https://zeroes.ca/tags/mcas" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mcas</span></a></p>
Broadwaybabyto<p>Long Covid can cause MCAS (mast cell activation syndrome) which gives many people alcohol intolerance. </p><p>I’m wildly allergic to alcohol and as my condition progressed I become unable to even be around open booze. </p><p>This graph shows the decline in alcohol sales in San Francisco from 2023 to 2024. Notice red wine is at the top - and it’s known to be one of the worst for those with MCAS.</p><p>That elephant in the room is trying to get your attention again! 1/2</p><p><a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://zeroes.ca/tags/mcas" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mcas</span></a> <a href="https://zeroes.ca/tags/histamineintolerance" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>histamineintolerance</span></a> <a href="https://zeroes.ca/tags/sobriety" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sobriety</span></a> <a href="https://zeroes.ca/tags/alcohol" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>alcohol</span></a> <a href="https://zeroes.ca/tags/covidisairborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisairborne</span></a> <a href="https://zeroes.ca/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a> <a href="https://zeroes.ca/tags/chronic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronic</span></a> illness <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a></p>
Deer Witch Nyx<p><a href="https://kind.social/tags/ArtVsArtist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ArtVsArtist</span></a>: <span class="h-card" translate="no"><a href="https://www.illmarks.com/@illmarks" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>illmarks</span></a></span> edition</p><p>I've spent the last year visualizing Long Covid. Not all of my favorite pieces work well in square crop, so please check out the fedi account above or <a href="https://illmarks.com" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">illmarks.com</span><span class="invisible"></span></a> !</p><p>Thank you so much for receiving & sharing my work--it means so much to me as this project continues to feel deeply important.</p><p><a href="https://kind.social/tags/ArtVsArtist2024" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ArtVsArtist2024</span></a> <a href="https://kind.social/tags/MastoArt" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MastoArt</span></a> <a href="https://kind.social/tags/FediArt" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FediArt</span></a> <a href="https://kind.social/tags/CreativeToots" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CreativeToots</span></a> <span class="h-card" translate="no"><a href="https://penfount.social/@penfount" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>penfount</span></a></span> <a href="https://kind.social/tags/chronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicIllness</span></a> <a href="https://kind.social/tags/postViral" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postViral</span></a> <a href="https://kind.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://kind.social/tags/LongHaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongHaulers</span></a> <a href="https://kind.social/tags/MillionsMissing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MillionsMissing</span></a> <a href="https://kind.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://kind.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> <a href="https://kind.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>POTS</span></a> <a href="https://kind.social/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>dysautonomia</span></a></p>
Barbara Wimmer - shroombab<p>In Österreich gibt es jetzt eine Liste an Off-Label-Medikamenten, die von der Österreichischen Gesundheitskassa (ÖGK) ab sofort übernommen werden bei <a href="https://chaos.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> und <a href="https://chaos.social/tags/PostCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCovid</span></a> und <a href="https://chaos.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> und <a href="https://chaos.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>POTS</span></a> </p><p><a href="https://www.meduniwien.ac.at/web/referenzzentrum-postvirale-syndrome/fuer-aerztinnen-gesundheitsberufe/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">meduniwien.ac.at/web/referenzz</span><span class="invisible">entrum-postvirale-syndrome/fuer-aerztinnen-gesundheitsberufe/</span></a></p><p>Ich bin sehr dankbar dafür, denn es stehen gleich 3 Medikamente drauf, die ich regelmäßig (täglich) einnehme und die mir sehr helfen. </p><p>Bisher hatte ich große Probleme mit der Kostenübernahme, es gab regelmäßig Ablehnungen. Ich hoffe, dass das nun besser klappt.</p>
Broadwaybabyto<p>Influencer Dominique Brown Dies of Food Allergy at 34 </p><p>Anaphylaxis needs to be taken much more seriously than it is.</p><p>Epi is great - but it’s only buying you time. Biphasic reactions can be lethal. </p><p>Also - especially if you have MCAS - make sure to learn the various ways anaphylaxis can present.</p><p>It doesn’t always involve the airway.</p><p>This was (in my opinion) a preventable death. It was an egregious disregard for Dominique’s life to suggest she take photos before going to get medical care. </p><p>Even “if” you think your reaction isn’t progressing quickly - it could change in an instant. </p><p>You should never delay medical attention</p><p>If you’re new to anaphylaxis and/or new to MCAS - I highly recommend learning the various ways it can impact your body. </p><p>I didn’t realize I was having anaphylaxis the first time it happened to me. I thought it was the flu. </p><p>I had diarrhea & vomiting, sore throat, fever and bone pain.</p><p>I finally went to ER after three days of suffering not because I suspected anaphylaxis - but because my throat was so sore I couldn’t keep fluids down.</p><p>The triage nurse took one look in my airway, stabbed me with an epi pen and whisked me into a code room.</p><p>My “sore throat” was actually swelling</p><p>My vomiting and diarrhea was classic GI anaphylaxis - and I was also having significant cardiac symptoms. </p><p>Thankfully I got medical care in time - and the team who treated me explained what to look for in the future.</p><p>Many of us think of wheezing, hives, hoarseness and throat closure when we picture an anaphylactic reaction. </p><p>In reality - it can spare the airway AND the skin. It can impact your gut, your heart and your reproductive organs. </p><p>In fact - my doctors can actually tell when I’m going into anaphylaxis by the changes in my EKG (highly recommend reading about Kounis Syndrome if your MCAS causes cardiac issues)</p><p>When it comes to anaphylaxis - treat early & get to hospital. Make sure you always have an epi pen (or two) with you and check regularly to make sure they haven’t expired. </p><p>If you’re unsure if you’re in anaphylaxis - go to ER to be certain. </p><p>Had I waited much longer my throat would have closed</p><p>Lastly - take people’s allergies seriously. In MCAS we don’t always know what the trigger will be - but when people do know what they’re allergic to - we need to be cautious and ensure they aren’t exposed</p><p>If we took allergies more seriously - Dominique would still be with us </p><p>For more on idiopathic anaphylaxis and the unique ways it can impact people with MCAS - check out my introduction to MCAS article: <a href="https://www.disabledginger.com/p/when-youre-allergic-to-everything" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">disabledginger.com/p/when-your</span><span class="invisible">e-allergic-to-everything</span></a></p><p>For more on Dominique’s death: <a href="https://www.usmagazine.com/celebrity-news/news/influencer-dominique-brown-dies-of-food-allergy-at-age-34/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">usmagazine.com/celebrity-news/</span><span class="invisible">news/influencer-dominique-brown-dies-of-food-allergy-at-age-34/</span></a></p><p><a href="https://zeroes.ca/tags/mcas" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mcas</span></a> <a href="https://zeroes.ca/tags/allergies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>allergies</span></a> <a href="https://zeroes.ca/tags/foodallergies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>foodallergies</span></a> <a href="https://zeroes.ca/tags/airborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>airborne</span></a> <a href="https://zeroes.ca/tags/anaphylactic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>anaphylactic</span></a> <a href="https://zeroes.ca/tags/mastcells" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mastcells</span></a> <a href="https://zeroes.ca/tags/epi" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>epi</span></a> <a href="https://zeroes.ca/tags/anaphylacticshock" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>anaphylacticshock</span></a> <a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a></p>
Broadwaybabyto<p>If you’re looking for resources to assist someone new to Long Covid, ME/CFS, POTS or MCAS - I’ve been slowly building guides that I hope will assist patients, caregivers AND healthcare workers who are willing to read them. </p><p>I’ve completed a three part series on MCAS and a separate three part series on POTS which I’ve compiled into a mega thread I will link below. </p><p>People have already provided great suggestions for a follow up series - including things like how to regulate temperature, how to handle dating and/or sex, how to discern which condition is driving which symptoms, how to talk to doctors in a way that will get them to understand, and how to cope with being a parent to a kiddo with these conditions. </p><p>If anyone has other suggestions - please reach out! I’m also working on a series about EDS which I hope will tie some of these topics together. As they say - when you can’t connect the issues think connective tissues! </p><p>Also - if you’re a parent to someone with any of these difficult to manage conditions and want to provide feedback, suggestions or contribute - please get in touch. I would love to connect!</p><p><a href="https://zeroes.ca/@broadwaybabyto/113615351711064251" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">zeroes.ca/@broadwaybabyto/1136</span><span class="invisible">15351711064251</span></a></p><p><a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://zeroes.ca/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> <a href="https://zeroes.ca/tags/pots" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pots</span></a> <a href="https://zeroes.ca/tags/mcas" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mcas</span></a> <a href="https://zeroes.ca/tags/EDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EDS</span></a> <a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonie</span></a> <a href="https://zeroes.ca/tags/covidisairborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisairborne</span></a> <a href="https://zeroes.ca/tags/covidisnotover" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisnotover</span></a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a></p>
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