Broadwaybabyto<p>If I could help non disabled people understand one thing about being disabled, it would be how important maintaining a baseline is. </p><p>When you’re chronically ill, your baseline is everything. </p><p>Even minor setbacks can be catastrophic, so we have to do a risk analysis before literally ANY activity</p><p>If you’re asking a disabled person to use valuable spoons… be prepared to hear “No”. </p><p>It’s not because they’re rude or they don’t like you or they’re “not trying enough”. </p><p>It’s because they know their body and they’ve assessed the risk of a setback to be too high. </p><p>When this happens, please respect their choice.</p><p>Imagine how hard it would be for you to constantly have to say “No” to people.</p><p>To pass up fun activities because you know you need to prioritize a medical appointment or things like cooking and cleaning. </p><p>That’s our reality. We’re working with such a small amount of resources that we have nothing extra to spare. </p><p>Boundary setting is incredibly hard, don’t make it harder for us by gaslighting and guilting us. </p><p>It’s impossible to understand until you go through it, so please take us at our word. </p><p>We’re the ones who suffer the setback. The ones who lose hard earned gains when we push too hard. </p><p>Support us, believe us, and let us say “No” </p><p><a href="https://zeroes.ca/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonie</span></a> <a href="https://zeroes.ca/tags/baseline" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>baseline</span></a> <a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://zeroes.ca/tags/boundaries" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>boundaries</span></a> <a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a></p>